Muscle tone is the resting state of your muscles. When a child has low muscle tone it means that they need to put a lot more energy into getting their muscles to turn on to do what they want them to do. I often try to explain this to parents by describing that feeling when you finally get to sink into the couch or your favorite arm chair and relax and then someone calls you from the other room and you have to rev up the energy to get up. Think about having to do that every time you move because that’s what it can be like for kiddos who have low tone….
It seems that most, if not all, children with Kabuki Syndrome have low tone. Low tone is usually associated with ligamentous laxity or joint hypermobility and generalized weakness. It is more difficult for children with low tone to progress with their motor skills, regardless of whether or not they have been diagnosed with a syndrome. They usually progress more slowly and not in the typical manner of other children. Because of weakness in the tummy muscles, they have more difficulty in lifting their legs to touch their knees, which should happen at about four months….
it seems that the “W” sit has been named in a way that makes it meaningless (or at least confusing) to the person doing it, while making total sense to the person “in charge of fixing it.” To avoid scenes like this in the future, I’m going to start calling this way of sitting by what it is anatomically: excessive internal rotation of the thigh bone coupled with excessive external…
I wanted to let you know how helpful it has been to have the shorts. My daughter has mastered sitting up from laying down already! This is in a very short period of time using the shorts! So THANK YOU!”